Tag Archive for: Down syndrome

Putting Her Mark on the World through Running

Kayleigh is putting her mark on the world and improving her health through running

Sandy Williamson submitted My Running Story’s first entry. However, the story isn’t about her. It’s about Kayleigh, her daughter and the first runner with Down syndrome to cross the Austin Half Marathon finish line. Kayleigh’s health was trending in the wrong direction. She was faced with a difficult task, one she is still working towards today. Read how Kayleigh has greatly improved her health and is putting her mark on the world.

Kayleigh Williamson, the first runner with Down syndrome to cross the Austin Half Marathon finish line, is putting her mark on the world through running.

Kayleigh Williamson was surprised with her Austin Distance Challenge jacket at the 2019 Austin Half Marathon finish line.

The start of putting her mark on the world

Kayleigh began running shortly after she was diagnosed with ITP (Idiopathic Thrombocytopenic Purpura – low blood platelets) in 2008. Auto-immune disorders tend to affect individuals with Down syndrome. In 2012, she was diagnosed with hypothyroidism. That was in addition to developing sleep apnea due to her weight and becoming pre-diabetic. In 2014, her diagnoses changed from hypothyroidism to hyperthyroidism (Grave’s Disease).

In 2016, Kayleigh started training for the Austin Half Marathon (her first!) as part of the Austin Distance Challenge. However, along the way, her platelets dropped to a life-threatening level and she had to have her spleen removed. This affected her training due to her recovery. But nine months later, she stood at her first half marathon. That first race took her almost six and a half hours to complete, but she completed it. She did not earn her jacket for the Distance Challenge.

Running to succeed

Not earning her jacket did not deter her from signing up two more times for the Austin Distance Challenge. On her third attempt, she earned her jacket. During her attempts to complete the Distance Challenge, she steadily lost weight resulting in the elimination of her sleep apnea. I bet you didn’t know that 22 million Americans have sleep apnea, however surgery isn’t the only option. Often a special mouthpiece can help patients get back to a restful sleep. But also, Kayleigh’s sugar count was back in a normal range and her Grave’s Disease went into remission. She did not develop any new autoimmune diseases and was taken off all medications. In 2019, not only did she earn her jacket, Kayleigh lost a total of 60 pounds.

Kayleigh Williamson’s book, It’s Cool to Be Me.

Through running

Kayleigh completed her first out-of-state half marathon last April. She helped found Kayleigh’s Club, a nonprofit running group for runners with disabilities. Kayleigh was not raised to use Down syndrome as a reason for not trying something. She was raised to know that there are things she will be able to do just like everyone else (and we celebrate that). Just like everyone else, there will be things she won’t be able to do (and we celebrate that since that means it’s something for someone else to do and we want to cheer them on).

Running has empowered Kayleigh to the point of writing and publishing her first children’s book. It’s Cool To Be Me is about the experience of her first half marathon. Her first book signing will take place on Thursday, July 11th, in Austin, Texas, at Fleet Feet Austin. Kayleigh is an Athlete Ambassador for the National Down Syndrome Society. She has goals to influence other individuals with disabilities to start running and make healthy food choices.

My Running Story is a series of blog submissions from runners just like yourself. They submitted their inspirational running stories as part of a contest to win an entry of their choice to the 2020 Ascension Seton Austin Marathon. Their stories range from crossing their first finish line to drastic lifestyle change due to running. Everyone’s story is different and unique, impacting them in a specific way. While each story is specific to the author, everyone can resonate in some form or fashion because of the power of running. Submissions will be accepted through July 31, 2020.

Staying Vertical with Kayleigh Williamson

On Saturday, November 18th, Kayleigh Williamson and her mother, Sandy, spent the morning training on Town Lake and then sat down with William Dyson for the next Staying Vertical interview. Kayleigh is a highly decorated athlete and became the first runner with Down syndrome to complete the Austin Half Marathon in 2017. During the Staying Vertical interview, they chat about what it felt like to cross the Austin Half Marathon finish line, the support of her friends and coaches, what’s it like to impact people around the world, and who would win if she and her mom competed in various events. Read her interview below and if you see her on the trail or running around town give her a huge high five!

Follow Kayleigh on Facebook and join Kayleigh’s Club today! You can see all her recognition and awards at the end of the interview.

Staying Vertical

Kayleigh’s Club at the Austin High Track.

William Dyson – You’re a runner. When did you begin running? Why?

Kayleigh Williamson – I started running in 2013 because of my health. I had to take medication for Grave’s disease. I’m in remission now, no more medication. But I still take vitamins.

WD – In addition to running, you’re a decorated basketball player and swimmer. Why is physical fitness important to you?

KW – Because it keeps me moving. I’ve been playing basketball since 2006. I’ve been swimming since 2008.

WD – Aside from running, you have to choose one: basketball or swimming. Go.

KW – Swimming (without hesitation).

WD – What are some positives you see from remaining so active? What are some obstacles?

KW – Because I’ve been swimming for a while, I’ve seen the progress athletes see when they get better from practice. I get better sleep at night. I don’t have to take my medicine anymore. I always remember the Special Olympics motto, “Let ME be brave. Let US be strong.”

When I started running more I had a leg injury. I went to RunLab and they fixed the pain.

Staying Vertical

Shane and Kayleigh.

WD – Earlier this year, you became the first individual with Down syndrome to complete the entire Austin Half Marathon course. What was going through your mind when you crossed the finish line?

KW – I remember crossing the finish line and felt so happy that I had to do my victory dance. I was so glad to have my friends at the finish line. My friend Shane from RunLab was there the whole time, holding my hand at the finish line. Shane would play Britney Spears, she’s my favorite because she’s from the same place as me, McComb, Miss.

WD – You’re a superstar. What was it like to get coverage on ESPNW, Runner’s World, TODAY, and People?

KW – I really do like it. I liked being on TV, talking about my mom. I’m proud of myself. I do races and events for my grandma. She has a bad memory, she can’t walk or run. She’s my motivating factor.

WD – Your story has been seen and your impact has been felt around the world. You’re positively impacting others with your accomplishments. How does that feel?

KW – It’s a good thing. I’m proud of myself. I’m showing everyone what I can do and that they can do it too.

WD – You plan to run the 2018 Austin Half Marathon. Do you feel like you have unfinished business?

KW – Yes!

WD – What are your race-day goals for February 18, 2018?

KW – I want to improve on my time. I want to run more of the course and walk less.

Gabriel, Kayleigh, and Natasha.

WD – How is training coming along?

KW – I ran four miles today (11/18) I’m doing good. I have my mom and my friend at 24-Hour Fitness, Gabriel, who helps me with the weights. Capital Metro takes me everywhere: 24-Hour Fitness, RunLab, McBeth Recreation Center.

WD – Take me through your Saturday training regimen.

KW – I get up early at 5:30 to run. I go to my Weight Watchers meeting with my best friends, Norma and Beth Ann. I roll at home with my pink Worm. I have a monthly dance at McBeth Rec Center on Saturdays.

WD – You can give advice to someone who’s beginning to go through a situation similar to yours. What is that advice?

KW – Come run/walk the Austin Half Marathon with me!

WD – You’re training, you’re exhausted, you want to quit. What keeps you going?

KW – I keep going because I want to beat my mom.

WD – How do your RunLab coaches inspire you?

KW – I inspire them! Dr. Davis started Kayleigh’s Club. Natasha is now the coach of Kayleigh’s Club. She’s a sweet girl, she’s with me every step of the way.

WD – You have a big supporter and training partner in your mom, Sandy. How does that impact you?

KW – My mom challenges me, I love her. I call her Coach Mommy. She’s my sweetheart. On Mother’s Day, I tell her she’s the best mom in the whole world. She plays Bohemian Rhapsody for me.

Staying Veritcal

Sandy and Kayleigh.

WD – You and your mom compete in the following events. Tell me who wins:

KW – 100m dash Me.

One mile – My mom.

Basketball game, first to 10 points – Me, I’ve been playing basketball for a while.

100m freestyle – Me.

WD – Favorite place to swim and run in Austin?

KW – swim – 24-Hour Fitness – William Cannon; run – Town Lake

WD – Favorite non-training activity?

KW – Dancing at McBeth Rec Center.

WD – What do you do for fun?

KW – Dance in the car with my mom, I’m the better dancer. We listen to Shania Twain, Man I Feel like a Woman, and Aretha Franklin, You Make Me Feel like a Natural Woman.

WD – Favorite Austin restaurant?

KW – West Gate Central Market, WestGate and Mr. Natural’s.

WD – Morning or evening workouts?

KW – Both.

WD – Friends or family come to visit. What’s the first Austin thing y’all do?

Staying Vertical

Kayleigh: half marathoners.

KW – Town Lake, I want to show them where I run.

WD – What’s your favorite holiday?

KW – Christmas and Valentine’s Day.

WD – You can choose one – dogs or cats?

KW – Both, we have four dogs and a cat. Their names are MegPie, Shadow, Nara, Maggie Mae, and Hercules (cat).

WD – What’s your favorite color?

KW – Red and black, those are my swim team colors.

WD – Kayleigh, thank you for taking the time to visit our office and lend your time for this interview. I had a blast getting to learn more about you, your motivations, and the amazing things you’ve done. We wish you all the best and we’ll see you on the trail and then at the start line on February 18th. Keep training and working hard and you’ll accomplish all your goals. Thanks for bringing your mom!

KW – You’re welcome. Thank you for interviewing me. I tried to keep my mom from talking too much. I will keep working hard because I want to beat my half marathon time and my mom. I also want to have more friends run with me. You can come to one of the workouts with Kayleigh’s Club. See you soon!

Recognition – At State (this last October), Kayleigh medaled in the 100m freestyle, the 50m backstroke, and the 25m breaststroke.  She has more than 15 medals at Area and State in swimming and more than 10 in basketball in Area and State.  She just completed her second 10-mile race (Run for the Water) in addition to 14 5K races, two 10K races, and two 8K races. She has Special Olympic medals in tennis, cycling, bowling, and track. The longest distance she has swum is 1600m.  

Kayleigh was the first individual with Down syndrome to train in International Krav Maga. Krav is Israeli self-defense. She trained for three years. International Krav has to be trained under a Master Krav Instructor. There are only two Masters in the US, one being in Texas.

Williamson will be the Ambassador for the Austin Rockin’ Resolution 10-Miler on 12/31.